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Topia!: Health: Conditions and Diseases: Neurological Disorders: Muscle Diseases: Muscular Dystrophies (53)
See Also:
 Ask NOAH About: Muscular Dystrophy - The basics, genetics, diagnosis, care and treatment, specific types and information resources. From NOAH (New York Online Access to Health).Becker Muscular Dystrophy Information Exchange - This web site serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease. DMD Forum - An International forum providing support and resources for families and individuals facing the challenge of Duchenne Muscular Dystrophy. DMD Options - Lifestyle options, conventional medical interventions and information for people interested in Duchenne muscular dystrophy. National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information. Muscular Dystrophy - A short information sheet on MD compiled by NINDS, the National Institute of Neurological Disorders and Stroke. Muscular Dystrophy Community - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better cope with this disease. Community moderated by volunteers. MDA Ride For Life - Pennsylvania Ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, May 3-4, 2003. Living For Today: A Guide for Parents of Boys with Duchenne Muscular Dystrophy - Living For Today is a growing reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories. Duchennes - Provides links to medical and non-medical organizations and people with Duchennes problems. A Guide for Parents - This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living. HealtHub - A brief definition of muscular dystrophy, followed by links to overviews, full text articles, research projects and organizations. DMD Information - Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options. FSH Friends - This site is a resource for individuals and families interested in Facioscapulohumeral Muscular Dystrophy. General Practice Notebook - Duchenne muscular dystrophy - Clinically-oriented information. Dr. John R. Bach - The DMD/SMA/ALS Doc - This site provides information about Non-Invasive Ventilation (NIV) and pulmonary care. Utilizing NIV as an alternative to a tracheostomy decreases hospitalization and increases quality of life. Muscular Dystrophy Campaign - Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK. DMD Pioneers Yahoo Support Group - A Yahoo support group, mailing list, and message archive for teens and adults with Duchenne Muscular Dystrophy. Family, caregivers, and friends of those affected by DMD are also encouraged to participate.
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