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Topia!: Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome (12)
See Also:
Canadian Ehlers-Danlos Association - Working together to provide assistance, support and resources for people living with this rare genetic disorder. Arlene Brandeis' Intuitive Art - An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each. Damaged - A Journal - The personal diary of a young woman learning to live with Ehlers Danlos Syndrome. Ehlers-Danlos Hope - Personal plea for help from a sufferer in Syria. Ehlers-Danlos Syndrome Support Group - This site offers extensive information for patients and doctors, plus links. Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public. New York / New Jersey Ehlers-Danlos and Hypermobility - Details about this support, message and discussion center. Includes a search feature and posting a message. Ehlers-Danlos Syndrome Information - A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA. EDS Today - The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide. Ehlers-Danlos National Foundation - Michiana Branch - Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps. NORD: Ehlers-Danlos Syndrome - EDS disease information from the National Organization for Rare Disorders.
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