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Topia!: Health: Conditions and Diseases: Blood Disorders: Anemia: Fanconi (19)
See Also:
Fanconi Anemia Research Fund - To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide. Fanconi Anemia: the Frohnmayer Family's Experience - The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness. Diamond-Blackfan Syndrome - A definition, epidemiology, clinical features, complications, investigations and management. International Fanconi Anemia Registry - A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided. Diamond Blackfan Anemia - Also known as hypoplastic anemia and pure red cell aplasia. Information and support for patients and families; DBA registry; donations to further research; and fund-raising. Fanconi Canada - Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families. Fanconi Anaemia - A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area. Fanconi Anemia Fact Sheet - Jewish Genetic Diseases - Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources. Fanconi Anaemia - A rare disorder found in children that involves the blood and bone marrow. The symptoms include severe aplastic anemia, hypoplasia of the bone marrow, and patchy discoloration of the skin. B Positive, Inc. - A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas. Alex and Matt Pearl - Personal stories of two children fighting Fanconi Anemia. Fanconi Anemia Web - An informational site for this disorder. Yahoo! Groups: blackfan - Open mailing list for Diamond Black Fan Anemia sufferers. Yahoo! Groups: fanconi - Discussion list for fanconi sufferers. International Fanconi Anemia Registry - Provides contact information, and an overview of what the study aims to achieve. Family Village: Fanconi Anemia - Features contact information for the Fanconi Anemia Research Fund. Links to personal accounts and areas where one can learn about the disease. Adam Day - Learn about a boy who passed away after a fight with Fanconi anemia. Find out how to make a donation to the Fanconi Anemia Research Fund. Fanconi Anemia Fact Sheet - University of Pittsburgh - Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
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